For any audience, Orphanet is the reference portal for information about rare diseases and orphan drugs. The aim of Orphanet is to help to improve diagnosis, care and treatment of patients with a rare disease, as explained in more detail in the video below.
Orphanet is an international website that provides information about all known rare diseases. Find out which services Orphanet offers or go straight to Orphanet.
Specific local information is available for each participating country of the Orphanet consortium. Find here the news specific to Belgium in Dutch or in French.
Orphanet projects at Sciensano
Sciensano manages several Orphanet projects, including the curation of Belgian data for the Orphanet database, and the translation of Orphanet to Dutch, of both the website and the database content.