Extra information

Disease-specific registries in the field of rare diseases at Sciensano
Belgian Neuromuscular Disease Registry (BNMDR)
Belgian Cystic Fibrosis Registry 

Belgian Plan of Rare Diseases (in Dutch or in French)

Orphanet
The portal for rare diseases and orphan drugs
- National Orphanet website for Belgium (in NL or in FR)

RIZIV
- Chronic diseases (in NL or in FR)
- Chronic condition status (in NL or in FR)

Belgian College for Human Genetics and Rare Diseases (in NL or in FR)