Disease-specific registries in the field of rare diseases at Sciensano
- Belgian Neuromuscular Disease Registry (BNMDR)
- Belgian Cystic Fibrosis Registry 

Belgian Plan of Rare Diseases (in Dutch or in French)

Orphanet: www.orpha.net

RIZIV
- Chronic diseases (in NL or in FR)
- Chronic condition status (in NL or in FR)

Belgian College for Human Genetics and Rare Diseases (in NL or in FR)